Dr Maryam Oskoui and Dr Michael Shevell.
Follow link below to Dr Shevell's easy-to-read report (PDF) on the latest research.
Leading the way in cerebral palsy research
Recent publications
Disabling perinatal hypoxic-ischemic brain injury commonly occurs without neonatal encephalopathy
Fortin O, Husein N, Oskoui M, Shevell M, Kirton A, Dunbar MJ and members of the Canadian, Neurology, February 2024
10.1212/WNL.0000000000208111
Early Biomarkers in the Prediction of Later Functional Impairment in Term Children with Cerebral Palsy
Samantha Eisman, Nafisa Husein, Darcy Fehlings, John Andersen, Maryam Oskoui, Michael Shevell, Ped Neurology, March 2023
Development of a Bedside Tool to Predict the Diagnosis of Cerebral Palsy in Term-Born Neonates
Amira Rouabhi, Nafisa Husein, Deborah Dewey, Nicole Leturneau, Thierry Daboval, Maryam Oskoui, Adam Kirton, Michael Shevell, Jama Ped, January 2023
10.1001/jamapediatrics.2022.5177
Assessing the stability of the GMFCS over time in children with cerebral palsy: A registry study
Huroy M, Ng P, Andersen J, Buckley D, Fehlings D, Kirton A, Koclas L, Pigeon N, van Rensburg E, Wood E, Shevell M, Oskoui M, Dev Med Child Neuro, December 2022
10.1111/dmcn.15375
Risk Factors for Term-Born Periventricular White Matter Injury in Children With Cerebral Palsy
Ammar Marefi, Nafisa Husein, Mary Dunbar, Deborah Dewey, Nicole Letourneau, Maryam Oskoui, Adam Kirton, Michael I. Shevell. Neurology. November 2022
Development and validation of a prediction model for perinatal arterial ischemic stroke (PAIS) in term neonates.
Srivastava R, Dunbar M, Shevell M, Oskoui M, Basu A, Rivkin M, Shany E, de Vries LS, Dewey D, Letourneau N, Hill MD, Kirton A, JAMA, June 2022
10.1001/jamanetworkopen.2022.19203
Epilepsy in children with cerebral palsy: a data linkage study
Szpindel Z, Myers K, Ng P, Dorais M, Koclas L, Pigeon N, Shevell M, Oskoui M, Dev Med Child Neurol, February 2022
10.1111/dmcn.15028
Cerebral Palsy videos
What do the F-words mean to youth with impairments?
by Andrea Cross, of McMaster University
AACPDM Presidential Guest Lecture by Dr Michael Shevell
"If Medicine is a Team Sport, What is the Pediatric Neurologist’s Role?"
What is GMFCS? A video and article
explanation from CanChild.
See also the many excellent CP videos produced by the Cerebral Palsy Foundation.
News & Conferences
On October 4th, 2023, three medical residents under the supervision of Dr. Shevell—Olivier Fortin, Gabrielle Lamber, and Heather Pekeles—traveled to Vancouver to present their abstracts at the 52nd CNS Annual Meeting, hosted at the Vancouver Convention Centre. The cerebral palsy registry team received a warm welcome!
On September 22nd McGill PhD student Lena Faust raised $4,500 for the CP Registry by running a half-marathon! This was a big project, as she lives with mild cerebral palsy herself. She made a training plan, followed it, and ran the 22km in 2 hours and 26 minutes! She was even profiled on CTV News. We'd like to give her our biggest thanks and respect for her dedication and generosity. Thank you, Lena!
For more than a decade the Canadian CP Registry has played an innovative and transformative role in CP research. The registry is now evolving to a new platform that addresses new and exciting research questions, includes even more data, and is aimed at being open to all Canadians living with CP. Read more on the KBHN website: "Canadian Cerebral Palsy Registry Undergoing Exciting Expansion".
The Registry owes a huge thank you to Gene Piccoli and the whole Piccoli family, who organized –and cycled!– a bicycling fundraiser trip from Toronto to Montreal in support of the CP Registry. Many thanks, we are touched and honoured!
You can join them in supporting our research by signing up at www.401bikechallenge.ca.
The Cerebral Palsy Registry was featured by Kids Brain Health Network, our main funding source, on the occasion of World CP Day 2018. Read the article to learn about the work we do and where we are heading in the coming years.
The Canadian CP Registry attended the 2nd National Knowledge Translation Conference in Rehabilitation hosted by the McGill School of Physical & Occupational Therapy on April 19 & 20, 2018 in Montreal.
The Registry is now on Twitter! Follow us on our new account, @CanCPRegistry, to get find out more about CP in Canada, our activities and our research.
www.twitter.com/CanCPRegistry
Canadian CP Registry investigators attended and participated in lectures and workshops at the inaugural Brain-Child-Partners Conference hosted by the CHILD-BRIGHT and Kids Brain Health networks. It took place in Toronto from November 6-8, 2017.
Canadian CP Registry co-directors Dr Maryam Oskoui and Dr Michael Shevell both gave Presidential Guest Lectures at the 2017 Conference of the American Academy for Cerebral Palsy and Developmental Medicine, which took place in Montreal in September 2017.
The Canadian Cerebral Palsy Registry is now listed on the Canadian Clinical Trials Asset Map, a comprehensive database for all Canadian clinical research assets. Register and find us on the map!
The Canadian Cerebral Palsy Registry was invited to present at the Research Day of the Regroupement provincial en Paralysie Cérébrale pédiatrique at the University of Sherbrooke's Faculty of Medicine on October 27, 2016. Thank you to Dr Pigeon for organizing an excellent conference.
Investigators from the Canadian Cerebral Palsy Registry presented at the annual Brain Development Conference in Calgary, and met for the annual Canadian CP Registry general meeting.
Canadian CP Registry co-director Dr Maryam Oskoui gave the Presidential Guest Lecture at the 2016 Conference of the American Academy for Cerebral Palsy and Developmental Medicine.
Investigators from the Canadian Cerebral Palsy Registry participated in the World CP Register Day in Stockholm on June 1, 2016, and gave several presentations at the conference, including one on the history, purpose and many uses of the CP Registry.
The Canadian Cerebral Palsy Registry made headlines on CTV News, CBC and The Montreal Gazette with the breakthrough finding that cerebral palsy may be caused not only by brain injuries, but also by genetic anomalies.
http://www.ctvnews.ca/health/cerebral-palsy-cases-also-caused-by-genetic-anomalies-not-just-brain-injury-study-1.2499824
http://www.cbc.ca/news/health/cerebral-palsy-linked-to-genetic-anomalies-1.3177689
Participating Centres
The Canadian Cerebral Palsy Registry is a database of basic information collected from children with cerebral palsy from hospitals, clinics and rehabilitation clinics from across the country.
It is the combined effort of these centres and their coordinators and investigators which have led to the current collection of invaluable data which has been used to help children afflicted with cerebral palsy
Hospitals and clincs from British Colombia, Alberta, Ontario, Quebec, Nova Scotia and Newfoundland have all helped contribute to the continued growth and development of the Canadian Cerebral Palsy Registry.
